Number 13

this was a simple one and it just hit me. I bought lunch for 3 guys in uniform. And I went and thanked them for serving. Simple. Easy. And made me happy. :)

Number 12

So life has been busy and I have 6 weeks and many things to go. Today I did two. One, I ran my first race ever . I have walked a 5k before Never ran. Today I ran. :) I did a 5k and ran more than I thought I would because in 6 weeks in my 1/2 marathon

Number Eleven

Valentines Day is around the corner. We dont really do much. But I am remember as a kid , Valentines day was a big deal in school. I saw posted on a FB page, to send Valentines to kids in childrens hospitals. I send 5 at different hospitals. It just took a minute.

Here is our local hospital

http://giving.childrensnational.org/site/PageServer?pagename=14ValentinesDayCampaign&s_subsrc=SM01_Facebook&s_src=14OD2Valentines

an answer to the bump in the road

Since about Christmas I have not felt well at all. We knew something was wrong, because my liver levels were out of whack. So , again more tests, more biopsies and more waiting. But we have an answer. And it is not more cancer, so that is a good thing.

I was diagnosed with NASH. 

I have done two rounds of liver dialysis. I have to make complete diet changes and lifestyle changes. But all of that should buy me time. And I maybe fine for a long time and never need a transplant. Or at some point I may need one. No one knows what future holds , but one day at a time.

I am struggling with this. I thought I saw the light of the end of the tunnel, but instead I hit a detour. Oh well, move forward and move on.

Today is World Cancer Day. A day to celebrate those who fought and won. Those who are fighting. And remember those who did not win the fight. Today is a day about Cancer and research. If you are on Facebook, please turn your profile purple. It will raise money. There is a link on my page. 

Hopefully next week finds me feeling more like me and less like a shell of myself. I can get back to the gym, start my diet changes, and start my life , in my new normal.

Perspective

Sept 23 2012

We went to MD and saw a little town. Had lunch. Went to Annapolis. Took pictures of the Naval Academy (while my Air Force husband booed) and too many doors. And we made a promise to go back. But we haven't. Because little did we know, as this picture was taken, I was very sick and life was about to change.

I got diagnosed with AML by treatment that next week . By treatment means it is a secondary cancer to my my orignal cancer, years ago. And so it became. Chemo. Radiation. Hair loss. Weight loss. Friendships lost. Friendships gained. And I survived. I had surgery and lost some female plumbing.  I got to a good place and had an autologous stem cell transplant on 10/10/13. A few short weeks late we got a double whammy. My cancer was in my liver and lungs and my husband was deploying. More chemo.

I reached my 100 day mark post transplant. And tonight , not feeling well, I had a moment while folding laundry

This pile really speaks about the last 16 months. Loose pants with drawstrings. Easy off , easy on, drawstring only. Pajamas. I lived in them. Button tops to reach my port. Tee shorts and sweatshirts. Layers. Chemo and losing female parts made for fun hormones and hot flashes. SOFT tanks. Easy port access and some days the only thing that could touch my skin. And my sicks, My beloved fuzzy socks. I still love them, but when I was weak and cold I got sent a lot with grippers. That helped a lot. Not pictured is the blanket that was so warm. Or my favorite pillow. Or my iPad filled with games and music.

There are parts of this journey that were awful and I am glad that they are over. Carrying bags everywhere in case I got sick. Wearing pull ups because again, you never know. The moment when your hair falls out in clumps.

There are parts of this journey that will stay with me forever. My husband was amazing. Stood by me thick and thin. The friends who just showed up and helped. Didnt ask, just did. The relationship with my parents and my sister are forever changed, for the better. The faith I found when I was sure I was done. The strength I tapped into more times the I can count. The friends who listened to me cry and held me.

And the things that are silly that I am having to have back. Hair bands. Everywhere. Good shampoo. Because, really, when you have no hair, spend 99 cents. Not $4.

Things I will be happy to never see again. A boost or ensure. A zofran tablet. Or reglan . Or any anti nausea meds.

My journey isnt over. Remission isnt reached yet and we have hit another obstacle. But, I have so much to look forward to it . And I plan to live life with a new perspective. To worry less. To smile more. To let it all go and just live, a little more. Be in the moment. Say I love you and mean it.

Number Ten

My husband and I enjoy eating out. He likes to try to new places. I go along because I need to eat. He goes for wild boar, I get salad. See a pattern? BUT this is a new Jen. (yeah, ok, kind of new Jen).

So, last night we decided to try a new restaurant during restaurant week. We have never done it. Fixed Price menu, usually a good deal, and you can try new food. Even I tried something new. For me.

We went to the Wine House. I highly recommend it and we will be back soon. Great wine and even better food. Jay got wild boar sausage, mussels and vanilla cherry bread pudding. I got a poached pear salad, beef provencal, and a chocolate something. Everything was great except the dessert for me. Too rich. And anyone who knows me, knows I love chocolate.

There will be more food adventures to come and soon paying it forward with volunteer work.

Number nine (or I lost my mind.)

See below for my 100 days post.

Today we went to a trapeze class at TSBY. The staff was amazing. Shout out to Elliot :) and to the the other patrons who loved my story. And this blog. So, I hate heights and my comfort zone is little. But I did . It was great.We loved it and will go back :)

Also, check out my photo page if you can help. Contest day. Jen D Photography.